Utility of rare disease registries in Latin America

"There are many registries in Latin America as dialysis and kidney transplantation, breast cancer, primary immune deficiency, acute coronary syndromes, but the focus here are the registries of lysosomal storage diseases (LSD) because is our experience. Registry of Gaucher disease, Fabry disease...

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Detalles Bibliográficos
Autores Principales: Martins A.M., Kerstenezky M., Linares A., Politei J., Kohan R., Ospina S., Varas C., Villalobos J., Amartino H., Franco S., Valadez G., Giugliani R., Guerra P., Sanches L.
Formato: Artículo (Article)
Lenguaje:Inglés (English)
Publicado: Kluwer Academic Publishers 2011
Materias:
Acceso en línea:https://repository.urosario.edu.co/handle/10336/22380
https://doi.org/10.1007/8904_2011_25