Utility of rare disease registries in Latin America
There are many registries in Latin America as dialysis and kidney transplantation, breast cancer, primary immune deficiency, acute coronary syndromes, but the focus here are the registries of lysosomal storage diseases (LSD) because is our experience. Registry of Gaucher disease, Fabry disease, Pomp...
Autores Principales: | , , , , , , , , , , , , , |
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Formato: | Artículo (Article) |
Lenguaje: | Inglés (English) |
Publicado: |
Kluwer Academic Publishers
2011
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Materias: | |
Acceso en línea: | https://repository.urosario.edu.co/handle/10336/22380 https://doi.org/10.1007/8904_2011_25 |