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Utility of rare disease registries in Latin America

There are many registries in Latin America as dialysis and kidney transplantation, breast cancer, primary immune deficiency, acute coronary syndromes, but the focus here are the registries of lysosomal storage diseases (LSD) because is our experience. Registry of Gaucher disease, Fabry disease, Pomp...

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Detalles Bibliográficos
Autores Principales: Martins A.M., Kerstenezky M., Linares A., Politei J., Kohan R., Ospina S., Varas C., Villalobos J., Amartino H., Franco S., Valadez G., Giugliani R., Guerra P., Sanches L.
Formato: Artículo (Article)
Lenguaje:Inglés (English)
Publicado: Kluwer Academic Publishers 2011
Materias:
Disease registries
Fabry registry
Gaucherregistry
Latin America diseases registries
Mucoolisac charidosis I registry
Pompe registry
Acceso en línea:https://repository.urosario.edu.co/handle/10336/22380
https://doi.org/10.1007/8904_2011_25

Internet

https://repository.urosario.edu.co/handle/10336/22380
https://doi.org/10.1007/8904_2011_25

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